My youngest child has special needs and needed to be seen in the emergency room. She cannot say much and particularly not when she is in pain or discomfort. We went to a children's hospital in Westchester NY, where I was repeatedly asked what was her pain level- I said it was high as she needed a catheterization (but when they asked he…
My youngest child has special needs and needed to be seen in the emergency room. She cannot say much and particularly not when she is in pain or discomfort. We went to a children's hospital in Westchester NY, where I was repeatedly asked what was her pain level- I said it was high as she needed a catheterization (but when they asked her she obviously could not answer), but they continually let in other kids who were clearly not in great discomfort. When we went to the bathroom, they literally erased her name from the waiting list and after every other child was let in but her, they said, they were too full and I would need to be patient. Well, that was when I began to talk very loudly about "discrimination" against children with special needs and needing to see a supervisor. (At this point we had been over 6 hours in the waiting room). After getting into the back area, we waited another 2.5 hours without seeing a single person. We ended up not needing the catheterization because she suddenly could urinate after more than 28 hours had passed. But I left a lengthy complaint letter (literally, a child with a scratched knee got in)and I think I managed to get children with special needs to be triaged slightly differently. Just because they aren't crying out in pain doesn't mean they aren't suffering.
I think the only way we will ever begin to scratch the surface will be if all hospitals are forced to publish ALL (every procedure, every item) of their prices online. I know Trump had an order requiring this, but most hospitals have the prices hidden on their websites or tell you to call for a price.
My youngest child has special needs and needed to be seen in the emergency room. She cannot say much and particularly not when she is in pain or discomfort. We went to a children's hospital in Westchester NY, where I was repeatedly asked what was her pain level- I said it was high as she needed a catheterization (but when they asked her she obviously could not answer), but they continually let in other kids who were clearly not in great discomfort. When we went to the bathroom, they literally erased her name from the waiting list and after every other child was let in but her, they said, they were too full and I would need to be patient. Well, that was when I began to talk very loudly about "discrimination" against children with special needs and needing to see a supervisor. (At this point we had been over 6 hours in the waiting room). After getting into the back area, we waited another 2.5 hours without seeing a single person. We ended up not needing the catheterization because she suddenly could urinate after more than 28 hours had passed. But I left a lengthy complaint letter (literally, a child with a scratched knee got in)and I think I managed to get children with special needs to be triaged slightly differently. Just because they aren't crying out in pain doesn't mean they aren't suffering.
I think the only way we will ever begin to scratch the surface will be if all hospitals are forced to publish ALL (every procedure, every item) of their prices online. I know Trump had an order requiring this, but most hospitals have the prices hidden on their websites or tell you to call for a price.
So sorry to hear your child was treated so poorly.